COVID-19-related Survey Series Details and Resources

Survey Design

To date, the All of Us Program has released two survey series specific to the COVID-19 pandemic:

• COVID-19 Participant Experience (COPE)
• Minute Survey on COVID-19 Vaccines

The All of Us Research Program COVID-19 Participant Experience (COPE) survey was meant to assess the impact of the COVID-19 pandemic on individuals' everyday lives and physical, mental, and emotional health. The survey was revised and re-released six times from May 2020 through February 2021 and included items from the COVID19 CDC Community Survey Bank, the Michigan Social Distancing Survey, the Coronavirus Pandemic Epidemiology (COPE) Consortium, the Impact of Event Scale (IES-R-6), the Optimism: Life Orientation Test, the UK Biobank Mental Health Questionnaire, the RAND MOS (Medical Outcomes Study) Social Support Survey, the Generalized Anxiety Disorder-7 (GAD-7), the Patient Health Questionnaire (PHQ-9), and the International Physical Activity Questionnaires (IPAQ). 

The All of Us Research Program Minute Surveys on COVID-19 Vaccines were brief surveys designed to assess experiences related to COVID-19 vaccination dosing and perceptions. The surveys were available to participants to complete from June 2021 through March 2022 and include items from the Dutch Mexican Flu Study and items developed specifically for use within the All of Us Research Program. 

COVID-19 Related Survey Versioning Changes

Scoring Considerations for the COVID-19 Related Survey Series

The COVID-19 Participant Experience survey series is composed of items from multiple sources and so can not be scored as a whole. The survey, however, does include several items from scales that can be scored alone including the Impact of Event Scale Revised PTSD Screening tool, the RAND MOS Social Support - Tangible Support Subscale, the Generalized Anxiety Disorder (GAD) 7, the Patient Health Questionnaire (PHQ) 9, the Cohen’s Perceived Stress Scale, the International Physical Activity Questionnaires (IPAQ), the  UCLA Loneliness Scale, the Brief Resilient Coping Scale, and the AUDIT-C. In addition to the linked external  resources, please see the How to Work with All of Us Survey Data featured workspace notebook for more information.

The Minute Survey on COVID-19 Vaccines  contains categorical items that can not be scored.  

Sample Eligibility

The COVID-19 Participant Experience survey was available to all All of Us participants after completion of the Basics survey. 

The Minute Survey on COVID-19 Vaccines was available to all All of Us participants after completion of the Basics survey. In addition, the survey was meant to capture vaccine dosing information on a continuous, rolling basis beginning with vaccine dosing data captured in the February COPE survey (e.g., if a participant reported receiving dose 1 of the COVID-19 vaccine in one instance of the series, they should not have been asked to report on dose 1 again). Ex. If a participant answered in the February COPE survey that they received dose 1 of the COVID-19 vaccine, but not dose 2, they would receive the Summer 2021 Minute survey, but only be asked about dose 2 and beyond. If the same participant indicated in the Summer 2021 Minute survey that they had not received dose 2, they would receive the Fall 2021 Minute survey and be asked about dose 2 again.

Note about known Minute survey data integrity issue: Due to a fielding error, a portion of participants responded to the following items more than once though they should have been fielded only one time. Ineligible responses for these items have been marked as invalid. These items are denoted with concept ID 2000000010 (AoUDRC_ResponseRemoval) and include a description of the response removed. Though observed instances of the issue have been invalidated, we still recommend that researchers review and clean their datasets to ensure other instances of skipped or missing Minute survey data are considered in preparation for analysis. 

• Cdc_covid_xx_a_date1
• Cdc_covid_xx_b_firstdose
• Cdc_covid_xx_a_date2
• cdc_covid_xx_b_seconddose

 For more information about survey samples and releases, please see [Introduction to All of Us Survey Collection and Data Transformation Methods]

Survey Completion Rates

Because date fields collected via the COPE and Minute surveys are recorded as collected in the Registered Tier CDR, it is not possible for researchers to accurately calculate response rate denominators themselves when working with that dataset. As a result, please find calculated response rate denominators for each of the COVID-19 related surveys currently available to researchers below.

• COPE May 2020: 311,695
• COPE June 2020: 313,536
• COPE July 2020: 318,958
• COPE November 2020: 322,099
• COPE December 2020: 323,847
• COPE February 2021: 328,249
• Minute Survey Summer 2021: 292,883
• Minute Survey Fall 2021: 329,791
• Minute Survey Winter 2022: 331,322

Data Model & Privacy Protection Considerations

All survey codebook variables (e.g., source codes) are deposited into the OMOP Common Data Model’s observation table and stored as concepts in an All of Us specific “PPI” vocabulary. This vocabulary is both browsable and downloadable via Athena, the online OMOP repository - for a listing of concepts specific to the COVID-19 Participant Experience survey and Minute Survey on COVID-19 Vaccines, please see these Athena entries: 

Select items from the COVID-19 related surveys have been either suppressed or generalized within the Registered and Controlled Tiers. Please see below for these specifics, which are also captured in the All of Us survey codebook and How All of Us Protects Participant Privacy. 

Registered and Controlled Tier Privacy Considerations for the Minute Surveys on COVID-19 Vaccines

Registered and Controlled Tier Privacy Considerations for the COPE Surveys