All of Us glossary

All of Us Research Program

Anatomical Therapeutic Chemical; classification scheme for drug data

Lists all fields present within the program data model with relevant metadata, including a description, the data provenance, and whether the field was impacted by privacy methods

Common Data Model

Details cleaning and conformance rules run between CDR_base and CDR to shape data to adhere to clean norms and expectations.

Selected group of participants you are interested in researching; created through Cohort Builder tool

Information in a patient’s medical record including diagnosed conditions (“conditions”), prescribed medications (“drugs”), or recorded physical measurements (“measurements”)

Details all concepts (rows) which are generalized in the data model with relevant metadata, including the Concept ID, the data provenance, a description of the generalization applied, and the expected generalization output

A saved collection of concepts from a particular 
domain (conditions, drugs, or measurements) to use for analysis

Details all concepts (rows) which are suppressed (removed) from the data model with relevant metadata, including the Concept ID and the data provenance

A participant who has consented to providing EHR data has completed the 3 main surveys

Current Procedural Terminology; a list of descriptive terms and identifying numeric codes used by physicians and health care professionals for the billing of medical services and procedures

Data and Research Center

Direct Volunteer; a participant who did not register through an HPO location

Electronic health record

Fast Healthcare Interoperability Resources

Details all fields (columns) which are generalized in the data model with relevant metadata, including a field description, the data provenance, a description of the generalization applied, and the expected generalization output

Details all fields (columns) which are suppressed (set to null) in the data model with relevant metadata, including a description and the data provenance

Health provider organization

International Classification of Diseases; used in the United States to classify diseases, illnesses, or injuries

An open-source web application that supports interactive data science and computations; contains computer code (Python and R) and text rich elements

A “computational engine” operating within notebooks; executes codes within notebook

Logical Observation Identifiers Names and Codes;  it is used by health care provider organizations to code laboratory test orders and results. For example, 2345-7 is the code used for the amount of glucose measured in blood during a blood test

Medical concepts describe information in a patient’s medical record, such as a condition they have, a doctor’s diagnosis, a prescription they are taking, or a procedure or measurement the doctor performed

National Institutes of Health

Observational Health Data Sciences and Informatics

Observational Medical Outcomes Partnership

Individual who has registered for the program, but not necessarily provided consent or completed surveys

Participant Provided Information

Participant Technology Systems Center; provides mobile applications and websites for participants to enroll in All of Us, provide data, and receive updates

Represented in biomedical research

Raw Data Repository

Naming system for all medications available in the U.S. market; the RxNorm name of each drug is a compilation of its active ingredients, strength, and form

Systematized Nomenclature of Medicine; connects the various terminology, medical codes, synonyms, and definitions used among different electronic health records (EHRs) so that they can be matched up for later reference

The original classification system in a participant’s EHR used for categorization of conditions, diagnoses, and procedures (e.g., ICD-9 and ICD-10CM codes) when it first enters our system. Source vocabularies are retained after being “mapped” to standard vocabularies so that data can still be searched using the original terminology or codes

A classification system that incorporates different source vocabularies into one system by “mapping” multiple terms or codes to a common vocabulary to facilitate and optimize data analysis

Details all tables which are suppressed (not available) in the data model

Under-represented in biomedical research